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Braeden's Sweet Space

Who is the real super hero here? This young man now has a place to develop his independence and study in college.

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Meet Braeden

Braeden is one of the most sincere, sweetest souls you will meet. He lives at home with his parents and school-aged siblings from which he requires a lot of support due to spina bifida. As he grows older, he desires a space that can help him express his independence. Braeden is musically inclined and is exploring a career in public relations.    

 

Braeden's Joy Room Ask:

 

  • A small fitness studio so he can work to maintain his body mass. Braeden started to lose muscle mass when COVID shut down his Y. Also, having a home gym means he doesn't have to rely on family for rides. 

  • A workspace where he can study, work & connect with others virtually — and designed to ADA guidelines.

  • A space to entertain friends. 

  • A Scottish bar theme - casual & relaxed. 

 

 

Project Challenges:

 

  • Braeden is confined to his room when working from home and completing school work.

  • He has no private social space where he and his friends could have fun together away from parents and siblings.

  • Braeden's bath is the only bathroom on the main level and is used by all six family members. 

  • He needs space to store the considerable medical supplies required for his healthcare.

  • Space limitations: bathroom 64 square feet, gym/office 175 square feet, living/hang out space 500 square feet.

The Finished Joy Room

Watch the Story

Thank you to our Design & Construction Team

  • Cal-Tex Lighting

  • The Comfort Squad

  • Crawford Merz Construction

  • Designed Cabinets

  • D G Welding

  • DJR Architects

  • Dynamic Edge, Inc.

  • Filament Lighting

  • Hirshfields

  • Katie Harms

  • Lees Ceramics

  • NCS Corporation

  • Noloart

  • PRX Performance

  • T. F. Striker

  • Tarkett

  • Tile x Design

  • Warmup

X-Ray Results

About Spina Bifida

Spina bifida is a birth defect that occurs when the spine and spinal cord don't form properly. It's a type of neural tube defect. The neural tube is the structure in a developing embryo that eventually becomes the baby's brain, spinal cord and the tissues that enclose them.


Normally, the neural tube forms early in pregnancy and it closes by the 28th day after conception. In babies with spina bifida, a portion of the neural tube doesn't close or develop properly, causing defects in the spinal cord and in the bones of the spine.
Spina bifida can range from mild to severe, depending on the type of defect, size, location and complications. When necessary, early treatment for spina bifida involves surgery — although such treatment doesn't always completely resolve the problem.

"As someone who suffered a head injury at a young age, which thankfully I was able to recover fully from, I remember the headaches and need for quiet space in my recovery. No one understood what I was going through. It was a lonely time.

 

"I am excited to see there is a group that is working to create space for joy, for children with special needs. We understand more now and I like to imagine a world where the children with both temporary special needs and permanent ones are able to find ways to thrive in this world."  — A Local Supporter

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