Finn's room scored big! Check out what our amazing group of volunteers pulled together for this little soccer fan!
Joy Collaborative, alongside a consortium of design and construction professionals, finish "away" space for Finn, a boy who lives with cystic fibrosis (CF) and attention deficit hyperactivity disorder (ADHD).
Finn McNamara, age 12, needed a space for his twice-daily CF treatment regimen and a quiet area to spend with family and friends. The treatment for Cystic Fibrosis demands the use of a pulsing vest to help loosen the chest. And Finn's hyperactivity prevents him from sitting for the duration of his treatment. "We don't have a lot of space, and the space we have has felt a bit disorganized. So we knew Finn would benefit from a quiet, dedicated space to maintain his treatment plan and stay organized," shared Heidi Olen, Finn's mom.
Finn needed a space to address his range of needs - a place to call his own. Joy Collaborative enlisted the help of freelance designers Claire Olson and Samuel Busman, who partnered with Gardner Builders to create a space designed in the home based on Finn's needs. Informed by his care team, the result, "Finns Breakaway," is a compact, flexible place that is calming with a bit of a "wow" factor. Adjustable lighting and comfortable seating will provide a space for him to regroup and relax when he becomes anxious. Unique storage solutions provide a spot for his collection of games and activities and showcase his prize possessions.
A highlight of the space is a feature wall with custom graphics provided by Minnesota United and framed signed jerseys from the players. Minnesota Children's and the Cystic Fibrosis Foundation provided healthcare expertise and guidance for the project. "Finn's Breakaway" is a nod to soccer, inspirational in the hope that Finn can outrun his health opponents by accessing a supportive space. We're so excited to have a supportive space so Finn can stay healthy. If this space becomes a hang-out space for him and his pre-teen friends, that would be a hat-trick," adds Olen.
Architectural Sales MN | LPAV, LLC | TPM Flooring
Claire Olson, Samuel Busman & Michelle Laun
Cystic fibrosis (CF) is an inherited disorder that causes severe damage to the lungs, digestive system and other organs in the body.
Cystic fibrosis affects the cells that produce mucus, sweat and digestive juices. These secreted fluids are normally thin and slippery. But in people with CF, a defective gene causes the secretions to become sticky and thick. Instead of acting as lubricants, the secretions plug up tubes, ducts and passageways, especially in the lungs and pancreas.
Although cystic fibrosis is progressive and requires daily care, people with CF are usually able to attend school and work. They often have a better quality of life than people with CF had in previous decades. Improvements in screening and treatments mean that people with CF now may live into their mid- to late 30s or 40s, and some are living into their 50s.