Finn’s Breakaway Draws Inspiration from Cystic Fibrosis Patients Passion for MN United.
March 3, 2021 (Minneapolis) Joy Collaborative alongside its consortium of design and building professionals finish “away” space for Oakdale boy who lives with cystic fibrosis (CF) and attention deficit hyperactivity disorder (ADHD).
Finn McNamara, age 12, needed a space for his twice daily CF treatment regimen and quiet space to spend with family and friends. Cystic fibrosis care demands adherence to use of a pulsing vest to help loosen the chest. Finn’s hyperactivity can prevent him from being able to sit for the duration of his protocol. “We don’t have a lot of space, and the space we have has felt a bit overrun by our stuff. We knew Finn would benefit from a quiet space to maintain his treatment plan and help with organizing our chaos would help me a whole lot,” said Heidi Olen, Finn’s mom. Especially now with COVID and reduced access to his physical outlets, Finn could really use a space to address his range of needs in a space he can call his own.”
Joy Collaborative enlisted the help of freelance designers Claire Olson and Samuel Busman who partnered with Gardner Builders to create a space designed in the home specifically based on Finn’s needs. Informed by his care team, the result “Finns Breakaway'' is a compact, flexible space that is calming with a bit of a “wow” factor. Adjustable lighting and comfortable seating will provide a space for him to regroup and relax when he becomes anxious. Unique storage from Focal Point Fixtures provides space for his collection of games and activities and will be showcase for prize possessions. A highlight of the space is a feature wall with custom graphics provided by Minnesota United and framed signed jerseys by Volmela Companies. Minnesota Children’s and the Cystic Fibrosis Foundation provided healthcare expertise and guidance for the project.
“Finn’s Breakaway” is a nod to soccer; inspirational in the hope that Finn can outrun his health opponents by accessing a supportive space. “We’re so excited to have a supportive space so Finn can stay healthy. If this space becomes a hang-out space for him and his pre-teen friends, that would be a hat-trick,” said Olen.
This is the second space finished for a youth with life-limiting conditions by Joy Collaborative. Joy Collaborative is a partnership of impassioned doers and givers who have come together to transform children’s spaces. The volunteer network makes these life-changing transformations at no cost to the child’s family. Finn’s retreat was designed by Olson, Busman, Dallas Smith and Michelle Laun. Gardiner Builders supported the build-out and construction.
The Joy Collaborative volunteer network includes professional interior designers and architects, contractors, builders, product manufacturers, medical care providers and developmental specialists. For the children and families served, Joy Collaborative harnesses the power of design to bring delight, enhance well-being, foster independence, and create community.
Finn’s Breakaway Space Partners
· Gardiner Builders
· Architects, Claire Olson, Samuel Busman, and Michelle Laun
· Interior Designer, Dallas Smith
· Olympic Companies
· Howard Roark & Associates
· Minnesota United
· Heidi Olen
· Cystic Fibrosis Foundation
· Children’s MN
· Mannington Commercial Flooring
· TPM Flooring
· Ezoboard acoustic wall panels
· Focal Point Fixtures
· Schrader Hemke
· Architectural Sales of MN
· Cal-Tex Electric
· LPAV LLC
Media Note: There will be a ribbon cutting on Friday, March 5th where interviews and video of the space will be accommodated.
For more information: Contact Kathy Jalivay, 651-248-2270.
New Organization to Design/Build spaces for Children with Life-limiting Medical Conditions
October 28, 2020 (Minneapolis) According to the CDC, 1:6 children in the US are diagnosed with a disability. Between emotional family dynamics, managing insurance claims, attending to career obligations and providing extra care to a disabled child, families can be stressed. Because of these pressures, Joy Collaborative was formed to bring a holistic approach to renovate spaces that are not supporting the functions of daily living for children with life-limiting medical conditions.
Joy Collaborative, a partnership of impassioned doers and givers, have come together to transform children’s spaces. Through the newly established 501(c)(3), the volunteer network makes these life-changing transformations at no cost to the child’s family. The volunteer network includes professional interior designers and architects, contractors, builders, product manufacturers, medical care providers and developmental specialists. For the children and families served, Joy Collaborative harnesses the power of design to bring delight, enhance well-being, foster independence, and create community.
Projects underway include:
o “Finn’s Retreat”; a relaxing space for a child with cystic fibrosis + ADHD. The space will provide an “opposite” space for Finn who is athletic and active and will benefit from a comfortable and soothing space to support his hour-long daily therapeutic regimen.
o “Bennett’s Field”; a super durable space for a child with spina bifida. The renovation will include exercise equipment and a fun, flexible space to encourage strength building as well as a unique (Minnesota Twin’s themed) hang-out spot for friends.
Founder and Executive Director Mark Ostrom created Joy Collaborative out of a desire to create spaces that had a lasting impact on the children who face life-limiting medical circumstances. “Joy Collaborative is a direct result of two significant moments in my life, said Ostrom. “After working alongside families with cleft palate, I heard their stories about the complexities of raising kids with medical conditions. Being part of the original Rainforest Café design team, I witnessed the power and excitement of great design. Sending a family off on an exotic travel experience, or meeting a celebrity is a fun time, but it is short-lived. Solving daily living problems is a more impactful way to support families who are short on resources. My hope is that Joy Collaborative can shift the outlook children have for themselves by creating functional and exciting spaces for their own well-being,” said Ostrom.
Joy Collaborative has launched a new website and is hoping to raise funds to build an additional ten spaces through 2021. It is through financial and time contributions that these important spaces are being designed and built for a segment of society that has largely been living in life-limiting conditions during the pandemic.
For more information: Contact Kathy Jalivay, 651-248-2270.